A biomarker, short for biological marker, is an objective and quantifiable measure of biological processes or states. Biomarkers can be used to deepen our understanding of a disease, or quantify its state and severity, and are critical in clinical trials in determining, at a biological level, therapeutic effect. In ALS/MND, we lack definitive, quantifiable biomarkers […]
Hear updates of what is happening in Innovation and Technology from members of our Advisory Council. How can technology improve quality of life and give us insights into ALS/MND in a meaningful way. Register here.
A diagnosis of ALS/MND is devastating, not only to the individual receiving the diagnosis, but their family members as well. Discussing a parent’s new diagnosis of ALS/MND with their child can be both challenging and emotional. In addition, children whose parent has been affected by ALS/MND may have fears, concerns, and questions that differ greatly […]
The history of clinical trials in ALS/MND has been fraught with failures. It has not been uncommon for a potential therapy to show promise in Phase 2 trial results, then prove to be ineffective in the subsequent, larger-scale Phase 3 trial. Clinical trials take a considerable amount of time, resources, and funding, and as such […]
The PALS & CALS Advisory Council of the International Alliance of ALS MND Associations would like to share the results of their CARE Survey done globally. Register here.
A diagnosis of ALS/MND can generate a range of emotions, for both the patient and their caregivers. Patients can experience anxiety and depression, feel isolated, and often feel like a burden to their loved ones. Caregivers of a loved one with ALS/MND will experience their own set of challenges, including caregiver burnout. This webinar will […]
A chance for representatives of ALS/MND associations from around the world to discuss best practice in care, support, technology, science and organisational development.
A chance for representatives of ALS/MND associations from around the world to discuss best practice in care, support, technology, science and organisational development.
This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND.
This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND.
ALS/MND Connect is an open session which allows people living with ALS/MND and their caregivers to attend an afternoon of presentations by neurologists and researchers .
Registration is not open yet. Check back soon.
This is not an easy topic, but one that is important to discuss. In this webinar we will provide PALS and CALS with guidance on how to address this stage of their journey, and what to look for in support and planning resources.
Every year the International Alliance of ALS/MND Associations celebrates 21 June as the global day of recognition of ALS/MND – a disease that affects people in every country of the globe. ALS/MND is a global problem. It does not discriminate on the basis of race, ethnicity, socioeconomic status or region. There are people living with ALS/MND all […]
Join us for the mid-year update from the Scientific Advisory Council. This interactive webinar will be informative but will also give you the opportunity to ask questions.
Join us in this webinar where we will be demonstrating applications that can help people living with ALS/MND with their communication. Panel: Alper Kaya (Co-Chair of the Turkish ALS/MND Association & Person living with ALS/MND and Richard Cave (Speech and Language Therapist & Project Manager for MND Association).
Join us for the first webinar of our Cure in ALS/MND series: What do I need to know about clinical trials? In this webinar we will learn more about the importance of clinical trials, how to find a suitable clinical trial, what to consider if you want to take part and next steps.
To celebrate the 25th Anniversary of Taiwan MND Association (TMNDA) endeavoring to empower people with ALS to live a better life, we'll launch a two-week Interactive Digital Art Exhibition, FLY HIGH & SHINE, from September 1st to 13th, 2022. We’ll host a press conference from 1030-1130am on September 1st, Thursday.
This is a special day designed for those providing care to People with ALS. This invitation is for primary caregivers, family members, friends and former caregivers.
Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical implications for our community.