About the Program: Informed consent is an essential component of research, but have you ever wondered why? Join us for our October ALS Learning Series where Emma Schmidt, Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine will discuss the history behind informed consent, explain the process of informed consent, your […]
The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI's latest work to discover and develop effective treatments for ALS. The Summit invites all members of the community to learn about ALS TDI's cutting-edge approach to ending ALS. This year along with […]
This webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to contact if more information is needed.
Date: 7 November 2023 Time: 10am-3:30pm (registration and coffee from 9:30am) Cost: £50 View Events Cancellation Policy Location: Newcastle United Football Club, St James Park, Newcastle Upon Tyne, NE1 4ST Aim: to introduce non respiratory specialist members of the MDT to secretion management and airway clearance. Objectives: By the end of the session you will: be better able to identify the presenting […]
Date: 21 November 2023 Time: 10am-3:30pm (registration and coffee from 9:30am) Cost: £50 View Events Cancellation Policy Location: National Council for Voluntary Organisations (NCVO), Society Building, 8 All Saints Street, London N1 9RL Aim: to introduce non respiratory specialist members of the MDT to secretion management and airway clearance. Objectives: By the end of the session you will: be better able to […]
Effective advance care planning is the important theme of this prestigious event, which is being organised by the MND Association and the Royal College of Speech and Language Therapists (RCSLT). The lecture will be led by Professor Bee Wee CBE. Bee was National Clinical Director for Palliative and End of Life Care, NHS England from […]
Time: 12:30pm - 1:00pm In this session Caroline Bidder, MND Network Coordinator, Swansea Bay will answer questions about how an MND network operates, what makes this dispersed model of care the appropriate one, and the impact it has on people living with and affected by MND. No need to book. Join using the link and passcode […]
Time: 11.00am – 12.30pm Aim: To increase understanding of how pain may be experienced in MND and potential methods to treat it. Objectives: to examine current practice for pain management in MND to evolve our understanding of pain in MND and how to alleviate it to explore current thinking and research about pain management and possible future […]
Join us for our December ALS Learning Series with Dr. Melinda S. Kavanaugh. Dr. Kavanaugh will discuss ways in which ALS affects mental health and the need for support – for both the person living with ALS and their caregivers, including the children and youth. Dr. Kavanaugh will also review recent research findings informing supportive […]
Title: A conversation with a genetic counselor: Could the ALS in my family be genetic? Speaker: Laynie Dratch Date/Time: Wednesday, January 31, 2024 at 12:00pm CST Link to register: https://attendee.gotowebinar.com/register/233260727250953046 About the Program: About the Program: Navigating ALS care can be complicated and filled with many complex decisions, including whether genetic testing is right for you. Join us for a […]
February 21, 2024 – 7AM ET This webinar will provide an understanding of the importance of nutrition in ALS/MND. We will address nutritional changes upon diagnosis, considerations for bulbar onset ALS/MND, and the myths and benefits of feeding tubes. Register Now