This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND.

ALS/MND Connect is an open session which allows people living with ALS/MND and their caregivers to attend an afternoon of presentations by neurologists and researchers .

Registration is not open yet. Check back soon.

This is not an easy topic, but one that is important to discuss. In this webinar we will provide PALS and CALS with guidance on how to address this stage of their journey, and what to look for in support and planning resources.

Every year the International Alliance of ALS/MND Associations celebrates 21 June as the global day of recognition of ALS/MND – a disease that affects people in every country of the globe. ALS/MND  is a global problem. It does not discriminate on the basis of race, ethnicity, socioeconomic status or region. There are people living with ALS/MND all […]

Join us for the mid-year update from the Scientific Advisory Council. This interactive webinar will be informative but will also give you the opportunity to ask questions.

Join us in this webinar where we will be demonstrating applications that can help people living with ALS/MND with their communication. Panel: Alper Kaya (Co-Chair of the Turkish ALS/MND Association & Person living with ALS/MND and Richard Cave (Speech and Language Therapist & Project Manager for MND Association).

Join us for the first webinar of our Cure in ALS/MND series: What do I need to know about clinical trials? In this webinar we will learn more about the importance of clinical trials, how to find a suitable clinical trial, what to consider if you want to take part and next steps.

To celebrate the 25th Anniversary of Taiwan MND Association (TMNDA) endeavoring to empower people with ALS to live a better life, we'll launch a two-week Interactive Digital Art Exhibition, FLY HIGH & SHINE, from September 1st to 13th, 2022. We’ll host a press conference from 1030-1130am on September 1st, Thursday.

This is a special day designed for those providing care to People with ALS. This invitation is for primary caregivers, family members, friends and former caregivers.

Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical implications for our community.

In this webinar we will learn more about the assistive technology of voice banking, how it works, when in the ALS/MND journey should it be done, and how to get access.

Join us in the second webinar of our Cure in ALS/MND series: Genetics – Counselling and Testing. This webinar will provide an update on the latest in ALS/MND Genetics and what is happening in the field.

The 2022 Alliance Meeting will be held on November 28, 29 & 30, 2022 in a hybrid format – both virtually and in San Diego, California, USA! The Alliance Meeting is an opportunity for member associations to meet and share advances in supporting people living with ALS/MND. It is a chance for representatives of ALS/MND […]

The 2022 Allied Professionals Forum will be held on November 30, December 1 & December 2, 2022 in a hybrid format – both virtually and in San Diego, California, USA! The Allied Professionals Forum (APF) is an educational and training forum for allied health professionals, such as physiotherapists, respiratory therapists, nutritionists, speech-language pathologists, social workers and more, […]

Learn about the importance of clinical trials, how to find a suitable clinical trial, and what to consider if you want to take part and next steps. Moderated by Rachael Marsden. Panelists include Allison Bulat, Nadia Sethi & Paula Trefiak.

Join us in an informal conversation with the 2022 Award winners on their careers, and their contributions to the field of ALS/MND. Panellists include Sally Light (Humanitarian Award recipient), Dr. Richard Bedlack (Forbes Norris Award recipient), Richard Cave (Allied Health Professional Award recipient).

Familial or sporadic ALS/MND, the importance of genetic counselling and testing can´t be emphasized enough. Join us for this scenario-based discussion which will look at real situations ranging from an ALS/MND asymptomatic carrier to someone whose parent had ALS/MND, but has not done genetic testing.

Student projects in ALS/MND.

Join us for the mid-year update from the Scientific Advisory Council.

The International Alliance of ALS/MND Associations surveyed the community about the Fundamental Rights of People living with ALS/MND and Caregivers. Learn more about the data, strengths and weaknesses at a global level, the questions raised and the topics that require further attention, and how these compared to our 2021 survey.

Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series, Nadia […]

Time: 11.00 am – 1.00 pm Optional breakout rooms for further discussion will be available after the event until 1:30pm We have some interesting presentations focussing on this important area of care: Sub-optimal decisions and accepting these as a practitioner Dr Rachel Woolrich, Principal Clinical Psychologist, the Oxford Psychological Medicine Centre. As a practitioner, patients in […]