Effective advance care planning is the important theme of this prestigious event, which is being organised by the MND Association and the Royal College of Speech and Language Therapists (RCSLT). The lecture will be led by Professor Bee Wee CBE. Bee was National Clinical Director for Palliative and End of Life Care, NHS England from […]
Time: 12:30pm - 1:00pm In this session Caroline Bidder, MND Network Coordinator, Swansea Bay will answer questions about how an MND network operates, what makes this dispersed model of care the appropriate one, and the impact it has on people living with and affected by MND. No need to book. Join using the link and passcode […]
Time: 11.00am – 12.30pm Aim: To increase understanding of how pain may be experienced in MND and potential methods to treat it. Objectives: to examine current practice for pain management in MND to evolve our understanding of pain in MND and how to alleviate it to explore current thinking and research about pain management and possible future […]
Join us for our December ALS Learning Series with Dr. Melinda S. Kavanaugh. Dr. Kavanaugh will discuss ways in which ALS affects mental health and the need for support – for both the person living with ALS and their caregivers, including the children and youth. Dr. Kavanaugh will also review recent research findings informing supportive […]
Title: A conversation with a genetic counselor: Could the ALS in my family be genetic? Speaker: Laynie Dratch Date/Time: Wednesday, January 31, 2024 at 12:00pm CST Link to register: https://attendee.gotowebinar.com/register/233260727250953046 About the Program: About the Program: Navigating ALS care can be complicated and filled with many complex decisions, including whether genetic testing is right for you. Join us for a […]
February 21, 2024 – 7AM ET This webinar will provide an understanding of the importance of nutrition in ALS/MND. We will address nutritional changes upon diagnosis, considerations for bulbar onset ALS/MND, and the myths and benefits of feeding tubes. Register Now
The Penn Frontotemporal Degeneration (FTD) Center is excited to open registration for our fourth annual familial conference, Uncovering the Genetics of FTD/ALS, on Wednesday, February 21st, 3:00PM to 6:00PM EST. Please register by visiting www.pennmedicine.org/FTDCFamilialConference2024. This event will take place virtually and the link will be provided once you've registered. Our team understands ALS, FTD, and related disorders can impact an entire family even when just one person is diagnosed. However, we also recognize the unique […]
Dr. Ikjae Lee, from the Eleanor and Lou Gehrig ALS Center at Columbia University, will present a summary of literature on the intake of various macronutrients and their impact on the progression of ALS. Building on this foundation, Dr. Lee will introduce recent findings that suggest a diet with a high glycemic index may be […]
We are kicking off State of Play for 2024 with a look at how tech research can help people living with MND. MND Australia's Dr Ben O'Mara will talk about the 'Game on with MND' project looking at how we can make gaming more accessible for people with MND and Dr Taylor Dick from the […]
This webinar will cover the essentials to understand respiratory support in ALS/MND. We will cover how breathing is affected, what care and support can be followed, non-invasive equipment available, and what is a traqueostomy, how it works, and considerations. Presenter: Susan Brumby
Moderated by Dr. Senda Ajroud-Driss, this webinar for both clinicians and people living with ALS will review the 3 drugs that are currently FDA-approved in the United States for the general ALS population. Panelists, Dr. Lauren Elman, Dr. John Novak, and Dr. Xiaowei (Bill) Su will present information on Riluzole, Radicava, and Relyvrio, including drug […]