About the Program: Informed consent is an essential component of research, but have you ever wondered why? Join us for our October ALS Learning Series where Emma Schmidt, Clinical Research […]
The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI's latest work to discover and develop effective […]
This webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to […]
Date: 7 November 2023 Time: 10am-3:30pm (registration and coffee from 9:30am) Cost: £50 View Events Cancellation Policy Location: Newcastle United Football Club, St James Park, Newcastle Upon Tyne, NE1 4ST Aim: to introduce non respiratory specialist members […]
Date: 21 November 2023 Time: 10am-3:30pm (registration and coffee from 9:30am) Cost: £50 View Events Cancellation Policy Location: National Council for Voluntary Organisations (NCVO), Society Building, 8 All Saints Street, London N1 9RL Aim: to introduce non […]
Effective advance care planning is the important theme of this prestigious event, which is being organised by the MND Association and the Royal College of Speech and Language Therapists (RCSLT). […]
Time: 12:30pm - 1:00pm In this session Caroline Bidder, MND Network Coordinator, Swansea Bay will answer questions about how an MND network operates, what makes this dispersed model of care the […]
Time: 11.00am – 12.30pm Aim: To increase understanding of how pain may be experienced in MND and potential methods to treat it. Objectives: to examine current practice for pain management in MND […]
Join us for our December ALS Learning Series with Dr. Melinda S. Kavanaugh. Dr. Kavanaugh will discuss ways in which ALS affects mental health and the need for support – […]
Title: A conversation with a genetic counselor: Could the ALS in my family be genetic? Speaker: Laynie Dratch Date/Time: Wednesday, January 31, 2024 at 12:00pm CST Link to register: https://attendee.gotowebinar.com/register/233260727250953046 About the Program: About the […]
February 21, 2024 – 7AM ET This webinar will provide an understanding of the importance of nutrition in ALS/MND. We will address nutritional changes upon diagnosis, considerations for bulbar onset […]
The Penn Frontotemporal Degeneration (FTD) Center is excited to open registration for our fourth annual familial conference, Uncovering the Genetics of FTD/ALS, on Wednesday, February 21st, 3:00PM to 6:00PM EST. Please register by visiting www.pennmedicine.org/FTDCFamilialConference2024. This event will take place virtually and the link will be provided once you've registered. Our […]
Dr. Ikjae Lee, from the Eleanor and Lou Gehrig ALS Center at Columbia University, will present a summary of literature on the intake of various macronutrients and their impact on […]