The International Alliance of ALS/MND Associations surveyed the community about the Fundamental Rights of People living with ALS/MND and Caregivers. Learn more about the data, strengths and weaknesses at a global level, the questions raised and the topics that require further attention, and how these compared to our 2021 survey.
Vous êtes-vous déjà demandé qui sont tous ces professionnels de la santé et comment ils prennent soin de vous ? Alors rejoignez-nous pour cette présentation du panel professionnel. Nous avons mis en place quatre panels, trois en français et un en anglais, où des professionnels de la santé des cliniques de la SLA, des CLSC […]
Have you ever wondered who all these health care professionals are and how they are caring for you? Then please join us for this Professional Panel presentation. We have four panels set up, three in French and one in English, where healthcare professionals from ALS clinics, CLSC, and rehabilitation centres will explain their profession and […]
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series, Nadia […]
Have you ever wondered who all these healthcare professionals are and how they take care of you? So join us for this presentation of the professional panel. We have set up four panels, three in French and one in English, where health professionals from ALS clinics, CLSCs and rehabilitation centers will explain their profession and their role […]
Time: 11.00 am – 1.00 pm Optional breakout rooms for further discussion will be available after the event until 1:30pm We have some interesting presentations focussing on this important area of care: Sub-optimal decisions and accepting these as a practitioner Dr Rachel Woolrich, Principal Clinical Psychologist, the Oxford Psychological Medicine Centre. As a practitioner, patients in […]
Have you ever wondered who all these healthcare professionals are and how they take care of you? So join us for this presentation of the professional panel. We have set up four panels, three in French and one in English, where health professionals from ALS clinics, CLSCs and rehabilitation centers will explain their profession and their role […]
ALS TDI has partnered with I AM ALS and the NEALS Patient Education & Advocacy Committee to develop this new series – creating a platform for the ALS community to meet some of the key people in the different ALS organizations that form our community and learn about the work that they are doing. The next event in the series […]
Join us in this conversation where we discuss warning signs, how to safeguard, get help , and maintain mental health in people living with ALS/MND and caregivers.
Join us this fall to discover how creativity and mindfulness can impact your daily life and mindset as a caregiver. Beginning September 28, explore the healing power of journaling. Over six weeks, we’ll dive into practical and powerful tools to aid caregivers in their journaling practices. Register for FREE today, whether you’re an avid writer or just beginning your […]
Time: 12:30pm - 1:00pm Find out what support the MND Association can provide. In this session Pauline Matheson-Marks, Head of National Care at the Association will answer questions about the various grants and equipment services that the MND Association can provide for people living with and affected by MND. And how to apply for them. No […]
From the MND Association - Following the tremendous success of the networking event last year, we are pleased to advise booking is now open for this year's event. Wonderful to see a group of experienced HSCP coming together with a common purpose. Thanks, a great day! Attendee at Networking Event 2022 Throughout the day you […]
An individual’s mental health and how they are supported is important when facing an ALS diagnosis. On October 11, please join presenters from Sunnybrook ALS Clinic and Hospice Niagara, who will provide in-depth information about the importance of emotional health, conversations about anticipatory grief, and how individuals, family, and friends can access mental health resources […]
Time: 10am – 4pm Cost: £40 View events cancellation policy Date: 16 October 2023 Location: Online delivery via Zoom Aim: To help health and social care professionals gain confidence in discussing death, dying and advance care planning with people with MND. By the end of the one-day masterclass, participants will: understand the benefits and challenges of offering opportunities to discuss dying […]
Starting October 25, learn about the importance of creating a self-care practice to help manage stress and maintain balance. In this four-week workshop, we’ll discover various self-care practices through guided art and mindfulness exercises. Register for FREE and learn about using art to improve mental health. (Please register by October 18, 2023) Register now
Starting October 25, learn about the importance of creating a self-care practice to help manage stress and maintain balance. In this four-week workshop, we’ll discover various self-care practices through guided art and mindfulness exercises. Register for FREE and learn about using art to improve mental health. (Please register by October 18, 2023) Register now
About the Program: Informed consent is an essential component of research, but have you ever wondered why? Join us for our October ALS Learning Series where Emma Schmidt, Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine will discuss the history behind informed consent, explain the process of informed consent, your […]
The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI's latest work to discover and develop effective treatments for ALS. The Summit invites all members of the community to learn about ALS TDI's cutting-edge approach to ending ALS. This year along with […]
This webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to contact if more information is needed.
Date: 7 November 2023 Time: 10am-3:30pm (registration and coffee from 9:30am) Cost: £50 View Events Cancellation Policy Location: Newcastle United Football Club, St James Park, Newcastle Upon Tyne, NE1 4ST Aim: to introduce non respiratory specialist members of the MDT to secretion management and airway clearance. Objectives: By the end of the session you will: be better able to identify the presenting […]
Date: 21 November 2023 Time: 10am-3:30pm (registration and coffee from 9:30am) Cost: £50 View Events Cancellation Policy Location: National Council for Voluntary Organisations (NCVO), Society Building, 8 All Saints Street, London N1 9RL Aim: to introduce non respiratory specialist members of the MDT to secretion management and airway clearance. Objectives: By the end of the session you will: be better able to […]
Effective advance care planning is the important theme of this prestigious event, which is being organised by the MND Association and the Royal College of Speech and Language Therapists (RCSLT). The lecture will be led by Professor Bee Wee CBE. Bee was National Clinical Director for Palliative and End of Life Care, NHS England from […]
Time: 12:30pm - 1:00pm In this session Caroline Bidder, MND Network Coordinator, Swansea Bay will answer questions about how an MND network operates, what makes this dispersed model of care the appropriate one, and the impact it has on people living with and affected by MND. No need to book. Join using the link and passcode […]
Time: 11.00am – 12.30pm Aim: To increase understanding of how pain may be experienced in MND and potential methods to treat it. Objectives: to examine current practice for pain management in MND to evolve our understanding of pain in MND and how to alleviate it to explore current thinking and research about pain management and possible future […]
Join us for our December ALS Learning Series with Dr. Melinda S. Kavanaugh. Dr. Kavanaugh will discuss ways in which ALS affects mental health and the need for support – for both the person living with ALS and their caregivers, including the children and youth. Dr. Kavanaugh will also review recent research findings informing supportive […]
