Featured
Join us for our December ALS Learning Series with Dr. Melinda S. Kavanaugh. Dr. Kavanaugh will discuss ways in which ALS affects mental health and the need for support – […]
Title: A conversation with a genetic counselor: Could the ALS in my family be genetic? Speaker: Laynie Dratch Date/Time: Wednesday, January 31, 2024 at 12:00pm CST Link to register: https://attendee.gotowebinar.com/register/233260727250953046 About the Program: About the […]
February 21, 2024 – 7AM ET This webinar will provide an understanding of the importance of nutrition in ALS/MND. We will address nutritional changes upon diagnosis, considerations for bulbar onset […]
The Penn Frontotemporal Degeneration (FTD) Center is excited to open registration for our fourth annual familial conference, Uncovering the Genetics of FTD/ALS, on Wednesday, February 21st, 3:00PM to 6:00PM EST. Please register by visiting www.pennmedicine.org/FTDCFamilialConference2024. This event will take place virtually and the link will be provided once you've registered. Our […]
Dr. Ikjae Lee, from the Eleanor and Lou Gehrig ALS Center at Columbia University, will present a summary of literature on the intake of various macronutrients and their impact on […]
We are kicking off State of Play for 2024 with a look at how tech research can help people living with MND. MND Australia's Dr Ben O'Mara will talk about […]
This webinar will cover the essentials to understand respiratory support in ALS/MND. We will cover how breathing is affected, what care and support can be followed, non-invasive equipment available, […]
Moderated by Dr. Senda Ajroud-Driss, this webinar for both clinicians and people living with ALS will review the 3 drugs that are currently FDA-approved in the United States for the […]
This webinar will provide information on ALS/MND platform trials. We will hear from HEALEY, MAGNET and SMART. They will update us on their approach, recruitment, trial eligibility and their latest […]
Title: The role of multidisciplinary care in ALS Date/Time: Thursday, March 28, 2024 at noon CST Link to register: https://attendee.gotowebinar.com/register/7883989190684308310 About the Program: Join us for our March ALS Learning […]
Wednesday, April 3, 2024 | 3:00 - 4:00pm EDT Participate in our upcoming ALS Town Hall on April 3rd to hear how ALS scientists, advocates, innovators, and gene carriers have […]
Title: Navigating Advanced Directives Date/Time: Monday, April 15th at noon CST Registration link: https://attendee.gotowebinar.com/register/8687536477912516955 About the talk: Advanced directives are legal documents that provide instructions for medical care. When living with ALS, it is […]
This webinar will provide tools and recommendations for People living with ALS/MND, their caregivers and youth. We will learn how to take care of our mental health upon diagnosis, how […]
This webinar will cover the essentials to understand respiratory support in ALS/MND. We will cover how breathing is affected, what care and support can be followed, non-invasive equipment available, and […]
About the program: People living with ALS must make many complex decisions regarding their future care needs, which can be stressful and overwhelming. In our upcoming ALS Learning Series, with […]
DAY 1 | MEDICAL | Aetiology, Diagnosis and Genetics AUDIENCE | General Practitioners, Neurologists, Nursing fraternity and Allied health practitioners The Motor Neuron Disease Association of South Africa and Genoa Underwriting […]
About the Program What can you do to control your phone or tablet, when tapping on the screen becomes difficult? June's ALS Learning Series will describe in detail how to […]
DAY 2 | MANAGEMENT | Disease Progression Management AUDIENCE | All medical and allied medics involved in the treatment and management of MND patients The Motor Neuron Disease Association of […]
Every year the International Alliance of ALS/MND Associations celebrates 21 June as the global day of recognition of ALS/MND – a disease that affects people in every country of the […]
On June 21, ALS/MND Global Awareness Day, we’ll be holding a public webinar, moderated by our Chair, Calaneet Balas, to raise the profile of ALS/MND through the impact of the […]
DAY 3 | LAW AND ETHICS | Ethics AUDIENCE | Everyone The Motor Neuron Disease Association of South Africa and Genoa Underwriting Managers are delighted to invite you to a […]
Title: The RISE Initiative: Clinical Research, Inclusion, Support, and Education Link to register: https://us02web.zoom.us/webinar/register/WN_boRKwZHESzCc9X_KjWrY0A#/registration Join us for our July ALS Learning Series where Allison Bulat will discuss the Research Inclusion Support and […]
Date/Time: Thursday, August 29, 2024 at 12pm CST Title: Empower your voice: Navigating conversations with your ALS care team Registration Link: https://us02web.zoom.us/webinar/register/WN_9ZTnqnxhQZ6yIkLTNOZ8Wg About the Program: Join us for our August ALS Learning Series […]
Title: Open Enrollment Matters: Health Insurance Considerations for People Diagnosed with ALS Registration Link: https://us02web.zoom.us/webinar/register/WN_6A8UOAtqR2eiOF9RJUYz9A#/registration About the Program Open Enrollment is the time each year when consumers can sign up or […]
Join us for the NEALS webinar, "Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One." Presenter Molly Spitz, RD, an ALS-focused registered dietitian from […]
Free ALS Caregiver Training Course, for at-home carers and health professionals, (in-person) in San Cataldo, Italy on Oct 7, 2024. Please see the graphic below for details.
Join us for the final installment in the "Advanced Respiratory Care in ALS" series as we delve into the complexities of respiratory failure in ALS. This session will focus on […]
2nd annual Italian Patient-Industry Networking Event with our partners, Oct 9th, in Milano, Italy. Free registration. It will focus on the necessary psychological support for persons living with […]
About the Program Join us for our October ALS Learning Series where Dr. Tavee will discuss complementary and alternative therapies for people living with ALS. These therapies can play a […]
This webinar will provide information on ALS/MND treatments currently in Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered and who to contact if […]
The workshop will focus on motor neuron diseases, in particular ALS and SMA. This hybrid meeting will elucidate biological mechanisms involved in muscular atrophy (at different ages and conditions) and […]
About the Program Join us for our November ALS Learning Series about hope with Dr. Richard Bedlack. In this talk, Dr. Bedlack will review what he has learned about hope […]