Global Day
Every year the International Alliance of ALS/MND Associations celebrates 21 June as the global day of recognition of ALS/MND – a disease that affects people in every country of the […]
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Webinar from Alliance: Global Awareness Day
Zoom WebinarOn June 21, ALS/MND Global Awareness Day, we’ll be holding a public webinar, moderated by our Chair, Calaneet Balas, to raise the profile of ALS/MND through the impact of the […]
Webinar from The MND Association of South Africa and Genoa Underwriting Managers
Zoom WebinarDAY 3 | LAW AND ETHICS | Ethics AUDIENCE | Everyone The Motor Neuron Disease Association of South Africa and Genoa Underwriting Managers are delighted to invite you to a […]
Webinar from Les Turner ALS Foundation: The RISE Initiative: Clinical Research, Inclusion, Support, and Education
Zoom WebinarTitle: The RISE Initiative: Clinical Research, Inclusion, Support, and Education Link to register: https://us02web.zoom.us/webinar/register/WN_boRKwZHESzCc9X_KjWrY0A#/registration Join us for our July ALS Learning Series where Allison Bulat will discuss the Research Inclusion Support and […]
Webinar from Les Turner Foundation: Empower your voice: Navigating conversations with your ALS care team
Zoom WebinarDate/Time: Thursday, August 29, 2024 at 12pm CST Title: Empower your voice: Navigating conversations with your ALS care team Registration Link: https://us02web.zoom.us/webinar/register/WN_9ZTnqnxhQZ6yIkLTNOZ8Wg About the Program: Join us for our August ALS Learning Series […]
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Webinar from Les Turner ALS Foundation – Open Enrollment Matters: Health Insurance Considerations for People Diagnosed with ALS
Zoom WebinarTitle: Open Enrollment Matters: Health Insurance Considerations for People Diagnosed with ALS Registration Link: https://us02web.zoom.us/webinar/register/WN_6A8UOAtqR2eiOF9RJUYz9A#/registration About the Program Open Enrollment is the time each year when consumers can sign up or […]
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Webinar from NEALS – Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One
Zoom WebinarJoin us for the NEALS webinar, "Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One." Presenter Molly Spitz, RD, an ALS-focused registered dietitian from […]
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ALS Caregiver Training Course from conSLAncio (in-person)
Free ALS Caregiver Training Course, for at-home carers and health professionals, (in-person) in San Cataldo, Italy on Oct 7, 2024. Please see the graphic below for details.
Webinar from NEALS – At the Crossroads: Advanced Respiratory Care in ALS
Zoom WebinarJoin us for the final installment in the "Advanced Respiratory Care in ALS" series as we delve into the complexities of respiratory failure in ALS. This session will focus on […]
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Event from conSLAncio: 2nd annual Italian Patient-Industry Networking Event
2nd annual Italian Patient-Industry Networking Event with our partners, Oct 9th, in Milano, Italy. Free registration. It will focus on the necessary psychological support for persons living with […]
Webinar from Les Turner ALS Foundation – Complementary & Alternative Therapies for People Living with ALS
OnlineAbout the Program Join us for our October ALS Learning Series where Dr. Tavee will discuss complementary and alternative therapies for people living with ALS. These therapies can play a […]
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Annual Clinical Trials Update
Zoom WebinarThis webinar will provide information on ALS/MND treatments currently in Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered and who to contact if […]
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Workshop from conSLAncio : Motor Neuron Diseases III Edition: Understanding the Pathogenetic Mechanisms to Develop Therapies
Palace of the Anatomical Institutes , ItalyThe workshop will focus on motor neuron diseases, in particular ALS and SMA. This hybrid meeting will elucidate biological mechanisms involved in muscular atrophy (at different ages and conditions) and […]
Webinar from Les Turner ALS Foundation – Stitching Strength: What I have learned about hope in ALS and how I am trying to weave that into my practice
OnlineAbout the Program Join us for our November ALS Learning Series about hope with Dr. Richard Bedlack. In this talk, Dr. Bedlack will review what he has learned about hope […]
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2024 Alliance Meeting
The 2024 Alliance Meeting will be attended by 100+ delegates in-person and 100+ delegates virtually from over 40 countries around the globe that represent the Alliance’s many member associations. The meeting […]
2024 Allied Professionals Forum
The Allied Professionals Forum (APF) includes clinical care presentations for ALS/MND health and social care professionals. During the APF, practitioners from around the globe come together to share their practical knowledge […]
35th International Symposium on ALS/MND
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic […]
Webinar from NEALS: Expanded Access Programs in ALS: What Have We Learned, Where Do We Go from Here?
OnlineIn this webinar, Drs. Andrews, Babu and Bedlack will explain what Expanded Access Programs (EAPs) are and how they differ from other pathways by which people living with ALS can […]
Webinar from Les Turner ALS Foundation: Family Caregivers: Angels in Agony
OnlineAbout the Program Every caregiver — and every caregiving journey — is unique, but there are some commonalities among caregivers of family members living with ALS. Most say caregiving is […]
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Webinar from NEALS: Understanding the Customer Experience Journey in ALS Clinical Trials Across North America
OnlineIn 2016, a "secret shopper" initiative was launched to assess the responsiveness of ALS clinical trial sites to patient inquiries. The findings revealed significant challenges in both the quality and […]
International Colloquium with WÄERTVOLLT LIEWEIN: Personal Assistance
Neumünster Abbey Centre Culturel de Rencontre Abbaye de Neumünster, 28 Rue Münster, 2160 Grund Luxembourg, LuxembourgWhen you slide more or less quickly from independence to total physical and social dependence, you really need to have confidence in your environment and in society in order not […]
Webinar from the International Alliance: ALS/MND Platform Trials Update
OnlineALS/MND PLATFORM TRIALS UPDATE 19 March 8 am ET Registration: https://us02web.zoom.us/webinar/register/WN_GEOgomftSVOcV0woGWug4g#/registration We will have captions available This webinar will provide information on ALS/MND platform trials. We will hear from […]
Webinar from Les Turner ALS Foundation: Observational Studies Help in the Quest for Effective ALS Therapies
OnlineAbout the Program In this talk Dr. Berry will discuss the aims, design considerations, and implementation of observational studies, highlighting the many ways observational studies hastened drug development and can […]
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Webinar from Les Turner ALS Foundation: The ALS Exposome: How Environmental Exposures Inform Disease Risk and Prevention
OnlineAbout the Program Join us for our April ALS Learning Series with Dr. Goutman, neurologist, from University of Michigan. Dr. Goutman will discuss research related to how environmental exposures influence […]
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ENCALS Meeting 2025
The upcoming ENCALS meeting will be hosted in Turin, Italy, from June 3-6, 2025. Satellite meetings will take place on Tuesday morning (June 3) and Friday (June 6). The program […]