Join us for the NEALS webinar, "Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One." Presenter Molly Spitz, RD, an ALS-focused registered dietitian from […]
Free ALS Caregiver Training Course, for at-home carers and health professionals, (in-person) in San Cataldo, Italy on Oct 7, 2024. Please see the graphic below for details.
Join us for the final installment in the "Advanced Respiratory Care in ALS" series as we delve into the complexities of respiratory failure in ALS. This session will focus on […]
2nd annual Italian Patient-Industry Networking Event with our partners, Oct 9th, in Milano, Italy. Free registration. It will focus on the necessary psychological support for persons living with […]
About the Program Join us for our October ALS Learning Series where Dr. Tavee will discuss complementary and alternative therapies for people living with ALS. These therapies can play a […]
This webinar will provide information on ALS/MND treatments currently in Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered and who to contact if […]
The workshop will focus on motor neuron diseases, in particular ALS and SMA. This hybrid meeting will elucidate biological mechanisms involved in muscular atrophy (at different ages and conditions) and […]
About the Program Join us for our November ALS Learning Series about hope with Dr. Richard Bedlack. In this talk, Dr. Bedlack will review what he has learned about hope […]
The 2024 Alliance Meeting will be attended by 100+ delegates in-person and 100+ delegates virtually from over 40 countries around the globe that represent the Alliance’s many member associations. The meeting […]
The Allied Professionals Forum (APF) includes clinical care presentations for ALS/MND health and social care professionals. During the APF, practitioners from around the globe come together to share their practical knowledge […]
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic […]
In this webinar, Drs. Andrews, Babu and Bedlack will explain what Expanded Access Programs (EAPs) are and how they differ from other pathways by which people living with ALS can […]
About the Program Every caregiver — and every caregiving journey — is unique, but there are some commonalities among caregivers of family members living with ALS. Most say caregiving is […]
In 2016, a "secret shopper" initiative was launched to assess the responsiveness of ALS clinical trial sites to patient inquiries. The findings revealed significant challenges in both the quality and […]
When you slide more or less quickly from independence to total physical and social dependence, you really need to have confidence in your environment and in society in order not […]
