Global Day
Every year the International Alliance of ALS/MND Associations celebrates 21 June as the global day of recognition of ALS/MND – a disease that affects people in every country of the […]
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Webinar from Alliance: Global Awareness Day
Zoom WebinarOn June 21, ALS/MND Global Awareness Day, we’ll be holding a public webinar, moderated by our Chair, Calaneet Balas, to raise the profile of ALS/MND through the impact of the […]
Webinar from The MND Association of South Africa and Genoa Underwriting Managers
Zoom WebinarDAY 3 | LAW AND ETHICS | Ethics AUDIENCE | Everyone The Motor Neuron Disease Association of South Africa and Genoa Underwriting Managers are delighted to invite you to a […]
Webinar from Les Turner ALS Foundation: The RISE Initiative: Clinical Research, Inclusion, Support, and Education
Zoom WebinarTitle: The RISE Initiative: Clinical Research, Inclusion, Support, and Education Link to register: https://us02web.zoom.us/webinar/register/WN_boRKwZHESzCc9X_KjWrY0A#/registration Join us for our July ALS Learning Series where Allison Bulat will discuss the Research Inclusion Support and […]
Webinar from Les Turner Foundation: Empower your voice: Navigating conversations with your ALS care team
Zoom WebinarDate/Time: Thursday, August 29, 2024 at 12pm CST Title: Empower your voice: Navigating conversations with your ALS care team Registration Link: https://us02web.zoom.us/webinar/register/WN_9ZTnqnxhQZ6yIkLTNOZ8Wg About the Program: Join us for our August ALS Learning Series […]
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Webinar from Les Turner ALS Foundation – Open Enrollment Matters: Health Insurance Considerations for People Diagnosed with ALS
Zoom WebinarTitle: Open Enrollment Matters: Health Insurance Considerations for People Diagnosed with ALS Registration Link: https://us02web.zoom.us/webinar/register/WN_6A8UOAtqR2eiOF9RJUYz9A#/registration About the Program Open Enrollment is the time each year when consumers can sign up or […]
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Webinar from NEALS – Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One
Zoom WebinarJoin us for the NEALS webinar, "Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One." Presenter Molly Spitz, RD, an ALS-focused registered dietitian from […]
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ALS Caregiver Training Course from conSLAncio (in-person)
Free ALS Caregiver Training Course, for at-home carers and health professionals, (in-person) in San Cataldo, Italy on Oct 7, 2024. Please see the graphic below for details.
Webinar from NEALS – At the Crossroads: Advanced Respiratory Care in ALS
Zoom WebinarJoin us for the final installment in the "Advanced Respiratory Care in ALS" series as we delve into the complexities of respiratory failure in ALS. This session will focus on […]
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Event from conSLAncio: 2nd annual Italian Patient-Industry Networking Event
2nd annual Italian Patient-Industry Networking Event with our partners, Oct 9th, in Milano, Italy. Free registration. It will focus on the necessary psychological support for persons living with […]
Webinar from Les Turner ALS Foundation – Complementary & Alternative Therapies for People Living with ALS
OnlineAbout the Program Join us for our October ALS Learning Series where Dr. Tavee will discuss complementary and alternative therapies for people living with ALS. These therapies can play a […]
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Annual Clinical Trials Update
Zoom WebinarThis webinar will provide information on ALS/MND treatments currently in Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered and who to contact if […]
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Workshop from conSLAncio : Motor Neuron Diseases III Edition: Understanding the Pathogenetic Mechanisms to Develop Therapies
Palace of the Anatomical Institutes , ItalyThe workshop will focus on motor neuron diseases, in particular ALS and SMA. This hybrid meeting will elucidate biological mechanisms involved in muscular atrophy (at different ages and conditions) and […]
Webinar from Les Turner ALS Foundation – Stitching Strength: What I have learned about hope in ALS and how I am trying to weave that into my practice
OnlineAbout the Program Join us for our November ALS Learning Series about hope with Dr. Richard Bedlack. In this talk, Dr. Bedlack will review what he has learned about hope […]
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2024 Alliance Meeting
The 2024 Alliance Meeting will be attended by 100+ delegates in-person and 100+ delegates virtually from over 40 countries around the globe that represent the Alliance’s many member associations. The meeting […]