Workshop from the MNDA – Respiratory Failure in MND: Secretion Management and Airway Clearance

Newcastle United Football Club

Date: 7 November 2023 Time: 10am-3:30pm (registration and coffee from 9:30am) Cost: £50 View Events Cancellation Policy Location: Newcastle United Football Club, St James Park, Newcastle Upon Tyne, NE1 4ST Aim: to introduce non respiratory specialist members of the MDT to secretion management and airway clearance. Objectives: By the end of the session you will: be better able to identify the presenting […]

£50

MND Association Workshop – Respiratory Failure in MND: Secretion Management and Airway Clearance

National Council for Voluntary Organisations (NCVO), Society Building

Date: 21 November 2023 Time: 10am-3:30pm (registration and coffee from 9:30am) Cost: £50 View Events Cancellation Policy Location: National Council for Voluntary Organisations (NCVO), Society Building, 8 All Saints Street, London N1 9RL Aim: to introduce non respiratory specialist members of the MDT to secretion management and airway clearance. Objectives: By the end of the session you will: be better able to […]

£50

From the MND Association – 2023 Annual Stephen Hawking MND Lecture

Online

Effective advance care planning is the important theme of this prestigious event, which is being organised by the MND Association and the Royal College of Speech and Language Therapists (RCSLT). The lecture will be led by Professor Bee Wee CBE. Bee was National Clinical Director for Palliative and End of Life Care, NHS England from […]

Free

From the MND Association – Conversation with an MND Network Coordinator

Online

Time: 12:30pm - 1:00pm In this session Caroline Bidder, MND Network Coordinator, Swansea Bay will answer questions about how an MND network operates, what makes this dispersed model of care the appropriate one, and the impact it has on people living with and affected by MND. No need to book. Join using the link and passcode […]

Free

Webinar from the MNDA – Pain Management for MND

Online

Time: 11.00am – 12.30pm Aim: To increase understanding of how pain may be experienced in MND and potential methods to treat it. Objectives: to examine current practice for pain management in MND to evolve our understanding of pain in MND and how to alleviate it to explore current thinking and research about pain management and possible future […]

Free

Webinar from Les Turner ALS Foundation – Mental Health Needs & Supports for People Living with ALS and their Caregivers

Online

Join us for our December ALS Learning Series with Dr. Melinda S. Kavanaugh. Dr. Kavanaugh will discuss ways in which ALS affects mental health and the need for support – for both the person living with ALS and their caregivers, including the children and youth. Dr. Kavanaugh will also review recent research findings informing supportive […]

Free

Webinar from the Les Turner Foundation: A conversation with a genetic counselor: Could the ALS in my family be genetic?

Online

Title: A conversation with a genetic counselor: Could the ALS in my family be genetic? Speaker: Laynie Dratch Date/Time: Wednesday, January 31, 2024 at 12:00pm CST Link to register: https://attendee.gotowebinar.com/register/233260727250953046 About the Program: About the Program: Navigating ALS care can be complicated and filled with many complex decisions, including whether genetic testing is right for you. Join us for a […]

Free

Virtual Conference from the Penn Frontotemporal Degeneration (FTD) Center: Uncovering the Genetics of FTD/ALS

Online

The Penn Frontotemporal Degeneration (FTD) Center is excited to open registration for our fourth annual familial conference, Uncovering the Genetics of FTD/ALS, on Wednesday, February 21st, 3:00PM to 6:00PM EST. Please register by visiting www.pennmedicine.org/FTDCFamilialConference2024. This event will take place virtually and the link will be provided once you've registered.   Our team understands ALS, FTD, and related disorders can impact an entire family even when just one person is diagnosed. However, we also recognize the unique […]