Join us for the final installment in the "Advanced Respiratory Care in ALS" series as we delve into the complexities of respiratory failure in ALS. This session will focus on crucial end-of-life and quality of life considerations, aiming to facilitate timely advanced directives. Our expert presenters will discuss key aspects of respiratory care, including the […]
2nd annual Italian Patient-Industry Networking Event with our partners, Oct 9th, in Milano, Italy. Free registration. It will focus on the necessary psychological support for persons living with disease. Please see link below: https://www.conslancio.it/2024/07/22/accompagnare-sempre-il-bisogno-del-sostegno-psicologico-nella-malattiamilano/
About the Program Join us for our October ALS Learning Series where Dr. Tavee will discuss complementary and alternative therapies for people living with ALS. These therapies can play a major role in helping people living with ALS feel better. Dr. Tavee will cover areas like nutrition, exercise and mind body therapies with a Q&A […]
This webinar will provide information on ALS/MND treatments currently in Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered and who to contact if more information is needed.
The workshop will focus on motor neuron diseases, in particular ALS and SMA. This hybrid meeting will elucidate biological mechanisms involved in muscular atrophy (at different ages and conditions) and describe therapeutic strategies for these disorders. For whom may be interested, a social dinner (40€) is planned on 8th November: it will be a […]
About the Program Join us for our November ALS Learning Series about hope with Dr. Richard Bedlack. In this talk, Dr. Bedlack will review what he has learned about hope in health and diseases, including ALS. He’ll talk about why it matters, where it comes from, what clinicians do to boost and to suppress it, […]
The 2024 Alliance Meeting will be attended by 100+ delegates in-person and 100+ delegates virtually from over 40 countries around the globe that represent the Alliance’s many member associations. The meeting provides an opportunity for member associations to meet and share advances in supporting people living with ALS/MND. It is an excellent opportunity for representatives of […]
The Allied Professionals Forum (APF) includes clinical care presentations for ALS/MND health and social care professionals. During the APF, practitioners from around the globe come together to share their practical knowledge and experiences, with a mission to improve the quality of care for people living with ALS/MND worldwide. On average, we expect 200 professionals to attend […]
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic lateral sclerosis and motor neurone disease. This year's event will take place in Montreal, Canada on 6-8 December 2024.
In this webinar, Drs. Andrews, Babu and Bedlack will explain what Expanded Access Programs (EAPs) are and how they differ from other pathways by which people living with ALS can access experimental products. They will review what we have learned from recent EAPs, what is happening with the current ones, and where they hope to […]
About the Program Every caregiver — and every caregiving journey — is unique, but there are some commonalities among caregivers of family members living with ALS. Most say caregiving is at the same time challenging, exhausting, rewarding, and full of unexpected emotions. Linda Levine is a caregiver for her husband David Buseck, a person with […]
In 2016, a "secret shopper" initiative was launched to assess the responsiveness of ALS clinical trial sites to patient inquiries. The findings revealed significant challenges in both the quality and quantity of responses, highlighting areas needing improvement. This webinar revisits the study in 2024 to evaluate current site responsiveness compared to the 2016 baseline. We […]
When you slide more or less quickly from independence to total physical and social dependence, you really need to have confidence in your environment and in society in order not to lose the will to live. Where does your personal life begin to be ‘worth living’ or ‘no longer worth living’? What happens then to […]
ALS/MND PLATFORM TRIALS UPDATE 19 March 8 am ET Registration: https://us02web.zoom.us/webinar/register/WN_GEOgomftSVOcV0woGWug4g#/registration We will have captions available This webinar will provide information on ALS/MND platform trials. We will hear from HEALEY, EXPERTS ALS and SMART. They will update us on their approach, recruitment, trial eligibility and their latest news.
About the Program In this talk Dr. Berry will discuss the aims, design considerations, and implementation of observational studies, highlighting the many ways observational studies hastened drug development and can create resources that aid the ALS community in the present and for years to come. About the Speaker Dr. Berry leads the Massachusetts General Hospital […]
About the Program Join us for our April ALS Learning Series with Dr. Goutman, neurologist, from University of Michigan. Dr. Goutman will discuss research related to how environmental exposures influence ALS. A Q&A will follow. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you […]
