Date: 21 November 2023 Time: 10am-3:30pm (registration and coffee from 9:30am) Cost: £50 View Events Cancellation Policy Location: National Council for Voluntary Organisations (NCVO), Society Building, 8 All Saints Street, London N1 9RL Aim: to introduce non respiratory specialist members of the MDT to secretion management and airway clearance. Objectives: By the end of the session you will: be better able to […]

February 21, 2024 – 7AM ET This webinar will provide an understanding of the importance of nutrition in ALS/MND. We will address nutritional changes upon diagnosis, considerations for bulbar onset ALS/MND, and the myths and benefits of feeding tubes. Register Now

The Penn Frontotemporal Degeneration (FTD) Center is excited to open registration for our fourth annual familial conference, Uncovering the Genetics of FTD/ALS, on Wednesday, February 21st, 3:00PM to 6:00PM EST. Please register by visiting www.pennmedicine.org/FTDCFamilialConference2024. This event will take place virtually and the link will be provided once you've registered.   Our team understands ALS, FTD, and related disorders can impact an entire family even when just one person is diagnosed. However, we also recognize the unique […]

Dr. Ikjae Lee, from the Eleanor and Lou Gehrig ALS Center at Columbia University, will present a summary of literature on the intake of various macronutrients and their impact on the progression of ALS. Building on this foundation, Dr. Lee will introduce recent findings that suggest a diet with a high glycemic index may be […]

We are kicking off State of Play for 2024 with a look at how tech research can help people living with MND. MND Australia's Dr Ben O'Mara will talk about the 'Game on with MND' project looking at how we can make gaming more accessible for people with MND and Dr Taylor Dick from the […]

  This webinar will cover the essentials to understand respiratory support in ALS/MND. We will cover how breathing is affected, what care and support can be followed, non-invasive equipment available, and what is a traqueostomy, how it works, and considerations.   Presenter: Susan Brumby