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80+
Member Associations
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40+
Countries Represented
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30+
Years of Global Collaboration
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Join Us in Amsterdam
December 5–8, 2026
Join the global ALS/MND community for the 2026 Alliance Meeting and Allied Professionals Forum in Amsterdam. The Alliance Meeting brings together Alliance members from around the world, while the Allied Professionals Forum welcomes healthcare professionals, researchers, advocates, and others working to improve care and support for people living with ALS/MND.
New Genetics Recommendations
The Alliance’s international Genetics Task Force has published new global recommendations for genetic counselling and testing in ALS/MND, aimed at improving equitable access to genetic services worldwide.
Annual Clinical Trials Update
November 4 | 8 a.m. ET
Join this webinar for the latest updates on ALS/MND treatments in Phase 3 clinical trials, including trial timelines, study locations, available programs, and key contacts.
2027 ALS/MND Caregiver Calendar
Order by November 16.
Celebrate caregivers supporting people living with ALS/MND around the world. Proceeds support the participation of people with lived experience in ALS/MND programs.
Upcoming Events
The Faces Behind the Mission
These are the people at the centre of everything the Alliance does.
Be part of the global movement.
80+ associations. 40+ countries. One shared mission.

