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International Alliance of ALS/MND Associations

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Working Together for People Living with ALS/MND

The International Alliance of ALS/MND Associations brings together organizations from around the world to accelerate progress for people living with ALS/MND and their communities.
Find Resources See Our Members Join the Alliance
80+
Member Associations
40+
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30+
Years of Global Collaboration

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Join Us in Amsterdam

December 5–8, 2026

Join the global ALS/MND community for the 2026 Alliance Meeting and Allied Professionals Forum in Amsterdam. The Alliance Meeting brings together Alliance members from around the world, while the Allied Professionals Forum welcomes healthcare professionals, researchers, advocates, and others working to improve care and support for people living with ALS/MND.

Explore Programs & Register

Illustration of a DNA strand with three check marks, representing genetic recommendations.

New Genetics Recommendations

The Alliance’s international Genetics Task Force has published new global recommendations for genetic counselling and testing in ALS/MND, aimed at improving equitable access to genetic services worldwide.

Read the Recommendations

Annual Clinical Trials Update webinar graphic for November 4, 2026.

Annual Clinical Trials Update

November 4 | 8 a.m. ET

Join this webinar for the latest updates on ALS/MND treatments in Phase 3 clinical trials, including trial timelines, study locations, available programs, and key contacts.

Register for November 4

2027 Global ALS/MND Caregiver Calendar promotional graphic.

2027 ALS/MND Caregiver Calendar

Order by November 16.

Celebrate caregivers supporting people living with ALS/MND around the world. Proceeds support the participation of people with lived experience in ALS/MND programs.

Order Your Copy

Upcoming Events

November 4: Webinar: Annual Clinical Trials Update. Register →
November 10: Member Forum: AI Impacts – Members Only.
November 16: Order deadline for the 2027 Caregiver Calendar. Order your copy →
November 24: Annual General Meeting (Members Only).
December 5–6: Alliance Meeting in Amsterdam – Members Only. Register →
December 7–8: Allied Professionals Forum in Amsterdam. Register →

See All Events

The Faces Behind the Mission

These are the people at the centre of everything the Alliance does.

Be part of the global movement.

80+ associations. 40+ countries. One shared mission.

Become a Member

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