• Skip to primary navigation
  • Skip to main content
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Advisory Councils/Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Archives
      • Newsletters
      • Meetings
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Working Together for People Living with ALS/MND

The International Alliance of ALS/MND Associations brings together organizations from around the world to accelerate progress for people living with ALS/MND and their communities.
Find Resources See Our Members
80+
Member Associations
40+
Countries Represented
30+
Years of Global Collaboration

Stay connected. Subscribe for the Alliance newsletter and updates on how to get involved.

 
This field is for validation purposes and should be left unchanged.

Global ALS/MND Caregiver Calendar

This year, our community is celebrating the faces and stories behind those who support people living with ALS/MND worldwide.

Pre-order your copy now. Proceeds support the participation of people with lived experience in ALS/MND programs and initiatives.

See the Calendar

Pre-orders are open for the Global ALS/MND Caregiver Calendar.

Applications open for the 2026 Patient Fellows and Alliance Fellows Programs.

Patient Fellows and Alliance Fellows

Applications are open for two programs that bring people affected by ALS/MND into global research conversations. Apply by Friday, July 3.

Apply by July 3

Applications open for the SEED Grant Program.

SEED Grant Program

Early-stage funding is available to support ALS/MND research infrastructure and readiness in low- and middle-income countries.

Apply by September 1

Applications open for the 2026 Awards.

2026 Alliance Awards

Nominations open July 1 for awards recognizing contributions to research, advocacy, clinical care, and lived experience.

Learn More

Free AI Voice Clones for People Living with ALS/MND

Through a new partnership with ElevenLabs, anyone living with ALS/MND can access a free Pro voice clone licence through the ElevenLabs Impact Program.

Get Started

Upcoming Events

2027 Caregiver Calendar: Pre-orders Open. Order your copy →
June 3 – July 3: Patient Fellows Program & Alliance Fellows Program Applications Open. Apply now →
July 1 – September 15: Alliance Award Nominations Open. Learn more →
July 1 – September 30: March of Faces Submissions Open – Members Only. Learn more →
September 15: Abstracts Deadline for the 2026 Virtual Poster Hall. Submit now →
December 5 – 6: Alliance Meeting in Amsterdam – Members Only. Register →
December 7 – 8: Allied Professionals Forum in Amsterdam. Register →

See All Events

The Faces Behind the Mission

These are the people at the centre of everything the Alliance does.

Be part of the global movement.

80+ associations. 40+ countries. One shared mission.

Become a Member

#ALSMNDWithoutBorders and messages from around the world

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login